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ABOUT Network: Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool

Published by Sue Friedman | Published on April 18, 2018

This slide deck provides an overview of how and why the ABOUT Network and Facing Our Risk of Cancer Empowered (FORCE) developed the Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool for helping match HBOC patients to prevention, detection, treatment and quality of life studies.   Read more

PCORnet: EHR Pilot Project Final Report and Presentation

Published by Joanna Ball | Published on April 18, 2018

The resources below include a final report and a concluding presentation from the PPRN EHR extraction pilot project whose objective was to evaluate the effectiveness and value of empowering individual participants to play an active role in making their own clinical data available for research through the use of a mobile app capable of downloading structured clinical data from patient portals and transmitting the data to a PPRN, which would extract data elements, transform them into the PCORnet Common Data Model (CDM), and load them into registries.  EHR Pilot Project Final Report (PDF) PPRN EHR-Extraction Project: Reflections and Projections presentation (PDF... Read more

Obesity Antibiotics Study: Lay Study Guide

Published by Joanna Ball | Published on April 17, 2018

This document provides an overview of the PCORnet Obesity Antibiotics Study in plain, easy-to-understand language. The guide includes an overview of the study process, explains the goals and aims of the project, and lays out details about stakeholder engagement, and data use, protection and analysis. Read more

REACHnet: Accelerating Clinical Knowledge Generation and Use

Published by Joanna Ball | Published on April 10, 2018

Tom Carton (REACHnet PI), discusses the process REACHnet used to convene a multi-stakeholder group to identify research priorities among health system leaders in this January 2016 presentation given at the National Academy of Medicine-PCORI meeting, Accelerating Clinical Knowledge Generation and Use. This work was funded by PCORI Health Systems Demonstration Project: Phase 1. Read more

Mid-South CDRN: Trial Accrual Tool and Instructions

Published by Jordan Capizola | Published on March 30, 2018

The purpose of this tool is to be able to create targets and track accruals of human participants for clinical trials over a specified period of time. You may use this resource for your own research projects; instructions for use are posted below and are also embedded in the template. Accrual graph instructions (.doc) Trial Accrual Tool Template (.xls) Read more

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